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This is on my profile page , but please read it .

soulight
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Posted by soulight

on Jul 24, 2008

I usually reach out to help others . Now I need help . Could you please keep me in your thoughts and prayers ? I am feeling very discouraged and disempowered today.

07/24/08

WOW I haven't posted here for a while. I have been struggling with severe pain and fatigue.

 Well, I got my decision at the appeal level . I lost. The judge manipulated all of my testimony and evidence . What he wrote is so different from what was presented. Things were left out. Things were added that weren't presented. Things that my doctors said were re-written as things the patient( me)  had postulated that I had . Case in point : doctor said that I had a stroke . Judge said that patient thought she had a stroke.

My lawyer said this judge was like this , but I did have hopes that my case would still be approved. What now ? I have to think , talk to my lawyer and see. I do know that working an 8 hour ( or 6,or4,or2 ) hour days is not possible . The only way I get through typing things on Aidpage is by typing /resting/typing / resting. The judge said that this contridicts even my doctors by saying that if you add up all the 20 minute on the computer with the 15-20 minute resting it adds up to several hours of being able to work full time . I am just so discouraged and I feel so invalidated. Please pray for me.

Thank you , soulight

~

 

 

08/08/08

So  , this is a cool little story !  :

I had just come home from the doctors office. She switched me back to morphine because the stress of the disability case has dramatically increased my pain . I was thinking "Now what do I do ?" I felt so lost . Guess what my Bible verse of the day was on my personal homepage ?

 

" For the Lord is out judge,

  the Lord is our lawgiver,

   the Lord is our king

   it is He that will save us." 

    -Isaiah 33 : 22

 

Pretty cool , Huh ?

 

                                                                     -soulight

 

My next meeting with a judge will be on August 20th . It is to determine my Medicaid status. Currently , if I did not have the county health program , I would pay OVER $2,500 a month for meds. I pray that I may get Medicaid ,as I need PT , OT , and now , some minor surgery .

                                                       God is Able.

If God is able , some might ask , why doesn't He just heal me ? I am not going to be so disrespectfull  as to ask the Almighty that question.  Who am I to ask the Maker of the Universe  " why me?" With all that happens in the world , why not me ?  It is all up to Him and Him alone. I still live as I can from moment to moment . God has all in His hands. His timing is best. Always.

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Comments... (15)



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soulight
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15. soulight posted on Jul 29, 2008

Cedric Mack

I just don't understand why you would post that on this page. Please try a different page to post your request , or start your own page.

thanks

soulight

Justmenow
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14. Justmenow posted on Jul 29, 2008

um I am sure he deserves it, congrats on his great work at school theres a kid that will go far... keep encouraging to do well by doing well in school hes helping himself have a future!!!! that in and of itself is a great reward

soulight
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13. soulight posted on Jul 26, 2008

Wow , I get poetic when I am on pain meds. Please forgive some of the sappiness of my posts. They are very sincere though.

soulight

soulight
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12. soulight posted on Jul 26, 2008
 in response to ekikaseven...   

Hi ekikaseven

When I see your prayers it always gives me a refreshing breath. If I only remember that God is on my side , I don't have to fight so much. I need to remember that He will fight on my behalf. Let Go and Let God . Such a little sentance with such a huge meaning.

In His Grace,

soulight

soulight
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11. soulight posted on Jul 26, 2008
 in response to Heidi4...   

Hi Heidi

It sounds like you and your husband know so personally what this fight is all about. I am glad that your husband at least won against the VA . Thank you for the support and keep up the fight for your rights !

I was thinking about what you said about my lawyer going in with an "already lost " mentality . Actually she was quite confident that we would win when she came to the hearing because she had just recieved new information from my rheumatologist. She was really stunned herself when the judge gave a negative to my case. This judge seems to turn down ALL cases .He just seems determined to keep his negative decisions no matter what the evidence. He is being observed and might soon lose his post.I hope my case is the one that puts him over the edge.

Other than that , yes my lawyer has been on the negative side. She has told me that she is thinking she is about ready to apply for disability herself . I don't know how she does it. She has a masters in social work , a masters in musical therapy and she is a lawyer. She is a real fighter for what is right. She also is on IV therapy and many medications fighting her MS. I am thinking that her negative side is from this fight. How well I know that being disabled can make you negative.

So , I am rambling and my hands are cramping up.

Thank you again for your comments and your support , Heidi !

soulight

soulight
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10. soulight posted on Jul 26, 2008
 in response to Elaine of TSA...   

Elaine ,

Thank you for your never wavering support and information. Having ideas to research to look for help will be great for me . It will keep me busy and I trust you to always have the best places to look .

Your words and support and expecially thoughts and prayers are a great comfort to me. To have friends who support me is like a balm to my soul.

soulight

soulight
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9. soulight posted on Jul 26, 2008
 in response to Emil...   

Hi Emil ,

I will be seeing my lawyer soon and I am going to bring a copy of your post so that we can discuss the possibilities. I am so deflated right now that it is hard to keep the battle up . Pain and fatigue are not things that help in fighting for yourself , but I am still determined to keep going forward. I am told that I am tenacious. I think that it is better described as plan old being stubborn.

soulight

soulight
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8. soulight posted on Jul 26, 2008
 in response to Justmenow...   

Thank you justmenow

Your words are so true and I am taking them to heart.

sincerely ,soulight

soulight
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7. soulight posted on Jul 26, 2008

Hi Sandy !

Oh how much I know the feeling of being on display . It's funny , I thought similar things to your horse/cow story ! It feels like they are trying to decide if you should be put out to pasture or maybe they can get just a few more years of work out of the old horse and then put it down !  I would much rather be in the pasture (with no one observing me ! ; )

Thank you for the support . It just means so much to me that people care. Your condition sounds painful . I hope you get a good rest and I am looking forward to hearing more from you.

soulight

Justmenow
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6. Justmenow posted on Jul 26, 2008

don't feel discouraged, just before the battle is won is when it seems the darkest... keep your chin up, and remember GOD is in control and timing is everything...HE knows best I will keep you in my prayers as GOD leads do NOT worry or fret things will be ok

Sandav1
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5. Sandav1 posted on Jul 26, 2008

Hi Soulight!

I too am disabled.  I had problems in the beginning because I tried to hide my disabilities.  I was very angry when my Dr. told me that I had to SHOW everyone and discuss it with groups of persons involved.  I felt violated beyond belief!  I felt like a horse or cow that was being observed whether I needed to be put down or if they put me in some type of contraption I could at least appear that I was of some use.

I know what your going through and I will pray that you get a break.  Remember that they want to see you listless, in pain (don't take your meds. when your due to see them)  My doc finally diagnosed me with Fibromyalgia, because they could not understand the technical terms that having a twisted spine caused in all of your movements.  All of my nerves in my system is affected by what is happening to my body.  It is late for me right now, I have to lie down...but I will tell you more when I have rested.  Until then sweet lady, my prayers are with you and thank you so much for the help you have given me....Sandy

Elaine of TSA
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4. Elaine of TSA posted on Jul 24, 2008

Dear Soulight,

How disappointing. 

I wonder what employers he had in mind when he made the determination that your ability to type periodically was sufficient to maintain fulltime gainful employment? 

Your lawyer might want to get the testimony of an expert witness that your time here on aidpage is psychologically therapeutic and not work.

Have you found any online support groups for your medical issues which may have some advice or be able to advocate on your behalf to get disability?

I was looking for information today and accidentally stumbled onto Yahoo ask page and found some clear, concise information relating to my question.  Have you visited that page and inquired about your issues?

my example:

http://answers.yahoo.com/question/index?qid=20080110093248AAWDD6W

 

You can be sure that your friends and fans here on aidpage will be praying for an overturn of this decision.

Blessings,

Elaine

Heidi4
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3. Heidi4 posted on Jul 24, 2008

Soulight..do not give up..get another lawyer..one that works so you only pay them if you win.  SSI is always like this. My husband was called Lazy to his face by such a judge a few years ago when we were trying to get him SSI. He has Fibromyalgia and because the judge does not think it is a "real" disease...he denied my husband. The idea is to shut you up so you will go away..It worked too. We did. But we are still trying to find a way to win that case. My son is now diabetic and SSI will not help him because his father is on Veteran's disability. (How much sense does THAT make?) Good luck to you..it's a tough fight. My husband is worn out from his fight with the Veteran's administration. It took six years but he did win that fight at least.  It is the judge's job to find fault in the case but the lawyer you had went in there with "thoughts of failure" to begin with. A lawyer should be able to fight for you..and want to win for you....so get a lawyer that actually wants to earn his money. 

 Hope things look up for you soon!
Heidi

Emil
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2. Emil posted on Jul 24, 2008

Soulight... you are in my thoughts.

Is this final... are there more steps in the process? How about writing to your congressman (or congresswoman) about your case. Discuss with your lawyer all possible avenues for finding some leverage... public support may be... from a local newspaper (tell your story to a journalist)... or an advocacy group interested in these matters.

May be... write about your case on Aidpage... with the names of the officials involved (first ask your lawyer about the wisdom of this!). Public exposure of the case may work for you, but may hurt you too (again, ask your lawyer!).

ekikaseven
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1. ekikaseven posted on Jul 24, 2008

Lord,

PLease work this matter out for Soulight.  Give her the victory in this situation.  Its a shame when one has worked & contributed to social security & that when we need it we are denied.  Its a shame that the government can regulate & keep something that rightfully belong to us.  Please give Soulight & lawyers wisdom & favor in this matter.  Let her disability be approved.  Amen.

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